CLICK ON OUR BROCHURE TO VISIT
THE NATIONAL SILVER ROSE WEBSITE IS OFFLINE! ARIZONA INTERNET INFO AVAILABLE THROUGH THIS BLOGSITE PLEASE CHECK BACK OFTEN!
More than likely you have never heard of AA or MDS or the other Rare Bone Marrow Diseases that encompass the name. Please read below our how we learned of Aplastic Anemia when our Granddaughter was diagnosed April, 2009 and then Myelodysplasic Syndromes in the Vietnam Veteran from Agent Orange
Please Click on the Link Above to Learn about these Rare Life Threatening Bone Marrow Diseases
Let's Bring Awareness to Your Community
Together.... We will help in saving lives!
Click on the Link to find out how you can help.
The Aplastic Anemia and; MDS International Foundation will participate in the 2nd annual global Rare Disease Day on February 28th, 2009. Aplastic anemia, MDS and PNH are considered "rare or orphan diseases" since fewer than 200,000 people in the United States are diagnosed with them. There are more than 6,000 rare disorders that, taken together, affect approximately 25 million Americans.
To raise awareness about rare diseases as a public health issue, affecting millions of people around the world, Rare Disease Day was established in Europe last year by EURORDIS, the European Rare Disease Organization, and the national alliances of rare disease patient organizations in each country. The goal is that Rare Disease Day will increase awareness of rare diseases, the special challenges encountered by those affected, and the need for research to develop safe, effective treatments and cures. Help make people aware of rare diseases by partnering with other rare disease organizations/patients in your community, contacting local media, posting videos and messages online, sharing your story, and nominating researchers to a Rare Disease Hall of Fame. Also consider writing your state governor to request that Feb. 28, 2009 be designated Rare Disease Day in your state. (A sample letter and resolution are posted on the NORD Rare Disease Day web page.)
To raise awareness about rare diseases as a public health issue, affecting millions of people around the world, Rare Disease Day was established in Europe last year by EURORDIS, the European Rare Disease Organization, and the national alliances of rare disease patient organizations in each country. The goal is that Rare Disease Day will increase awareness of rare diseases, the special challenges encountered by those affected, and the need for research to develop safe, effective treatments and cures. Help make people aware of rare diseases by partnering with other rare disease organizations/patients in your community, contacting local media, posting videos and messages online, sharing your story, and nominating researchers to a Rare Disease Hall of Fame. Also consider writing your state governor to request that Feb. 28, 2009 be designated Rare Disease Day in your state. (A sample letter and resolution are posted on the NORD Rare Disease Day web page.)
VIETNAM VETERANS OF AMERICA - COCHISE COUNTY CHAPTER #1020
ASSOCIATES OF VVA
COCHISE COUNTY CHAPTER #1020
MONTHLY MEMBERSHIP MEETINGS:
1ST TUESDAY OF EVERY MONTH
SIERRA VISTA LIBRARY
MONA BISHOP ROOM
AVVA MTG @ 4:30 PM
VVA MTG @ 5:30 PM
** VIETNAM COMBAT AND ERA VETERANS **
IT'S SO EASY TO JOIN! JUST BRING A COPY OF YOUR DD214 TO THE MEETING - YOU'LL FILL OUT A MEMBER APPLICATION AND PAY YOUR DUES - THAT'S IT!
*** AVVA MEMBERSHIP ***
OPEN TO ALL VETERANS - FAMILY - FRIENDS - SUPPORTERS - NO DOCUMENTS REQUIRED - JUST PICK UP YOUR MEMBERSHIP APPLICATION AND PAY YOUR DUES - IT'S SO EASY AND SO MUCH FUN!
AVVA 1020'S NEW PEER TO PEER PTSD SUPPORT GROUP FOR SIGNIFICANT OTHERS!
CLICK ON FLYER FOR INFO!
INFO FOR OUR NEXT SILVER ROSE AGENT ORANGE AWARENSS CHARITY RIDE IN COCHISE COUNTY AND HISTORICAL TOMBSTONE COMING SOON!
SOME OF OUR GREAT SPONSORS!
DOC HOLLIDAY'S SALOON IN TOMBSTONE!
ON FACEBOOK TOO!
"MONSTER SIGNS LLC"
WE THANK MONSTER SIGNS FOR THEIR COMMITTMENT AND GENEROUS SPONSORSHIP THAT GAVE US THE ABLITITY TO PRESENT ANOTHER SUCCESSFUL SILVER ROSE CHARITY RIDE ~ BIKE SHOW ~ MEDICAL INFO BOOTH ~ HONORS & RECOGNITION CEREMONY AT THIS YEAR'S NAMJAM WHERE
WE ALSO APPOINTED OUR NEWEST ARIZONA DIRECTOR, MAVIS YAZZIE SERVING ALL 4-CORNER STATES OF THE NAVAJO NATION!
WE ALSO APPOINTED OUR NEWEST ARIZONA DIRECTOR, MAVIS YAZZIE SERVING ALL 4-CORNER STATES OF THE NAVAJO NATION!
WELCOME MAVIS & THANK YOU FOR YOUR COMMITTMENT OF SERVICE TO THE SILVER ROSE & THE VETERANS WE SERVE!
WE ALSO HONORED
SILVER ROSE ADVOCATE: TANYA DOOLINE, IRAQI WAR VETERAN NOW SERVING AS A VETERANS COORDINATOR OF THE NAVAJO NATION
WE ALSO HONORED
SILVER ROSE ADVOCATE: TANYA DOOLINE, IRAQI WAR VETERAN NOW SERVING AS A VETERANS COORDINATOR OF THE NAVAJO NATION
SILVER ROSE ADVOCATE: LES RYAN, VIETNAM VETERAN NOW SERVING AS A VETERAN BENEFIT OFFICER - VVA AZ STATE
WE THANK BOTH OF THESE VETERAN ADVOCATES FOR THIER DEDICATED SERVICE TO THE SILVER ROSE & THE VETERANS WE SERVE!
WE THANK BOTH OF THESE VETERAN ADVOCATES FOR THIER DEDICATED SERVICE TO THE SILVER ROSE & THE VETERANS WE SERVE!
WE THANK RICK AVOLIO, DIRECTOR OF THE MEDAL OF HONOR ~ RETURN WITH HONOR DISPLAY & PROGRAM THAT MADE NAMJAM 2008 ONE OF THE MOST PATRIOTIC & CELEBRATED EVENTS IN ALL OF ARIZONA IN 2008!
WITH OUR DEEPEST GRATITUDE, WE THANK RICK AND THOSE THAT TRAVELED SO FAR TO BRING THE MEDAL OF HONOR TO NAMJAM!
PLEASE BE SURE TO VISIT INTERNATIONAL PICTURES FX WEBSITE TO VIEW THE NAMJAM PICS & OTHER CEREMONIES & EVENTS THE MOH TOOK PART IN THIS YEAR AND WHERE IT IS GOING NEXT YEAR!
CLICK MOH GRAPHIC TO VISIT THE GALLERY
INTERNATIONAL PICTURES FX WEBSITE
THE CARNATIONS & FLAG WILL BE CONCLUDED AT TAPS & 21 GUN SALUTE & WILL TAKE THIER FINAL JOURNEY TO BE PLACED AT THE APEX OF THE VIETNAM MEMORIAL WALL
WASHINGTON D.C. - SPRING OF 2009
THIS PROGRAM & THE NAMJAM EVENT WILL BE INCLUDED IN THE "RIDE OF HONOR" DOMUMENTARY. DON'T MISS THIS OPPORTUNITY TO BE A PART OF THIS HONORABLE PROGRAM!
PSST HEY YOU! 
COME BACK OFTEN FOR INFO ON OUR NEXT CHARITY RIDE TO SIX GUN CITY IN TOMBSTONE!
LIVE MUSIC & BBQ AT THE END OF THE RIDE!
THANKS KHIT107.5 FM!
CLICK ON THIER LOGO & SHOW SOME LOVE!
WE THANK TEP & THE CAT EMPLOYEE VOLUNTEER RIDERS!
WE THANK ALL OUR RIDERS THAT COME FROM NEAR & FAR TO SUPPORT OUR CHARITY POKER RUN & BIKE SHOW! MANY ARE VETERANS - AMERICAN LEGION RIDERS * PATRIOT GUARD RIDERS * YAQUI WARRIOR RIDERS * VFW RIDERS * AND JUST A BUNCH OF GREAT PATRIOTIC AMERICN RIDERS THAT LIKE TO COME OUT AND SUPPORT THE SILVER ROSE & THOSE WE SERVE!
WE THANK YOU ALL!
PLEASE VISIT OUR SPONSOR LINKS BELOW AND TO THE RIGHT --->
HARDTAILZ WEBSITE!
WE THANK HARDTAILZ * L&M TRUCKING * SWIFT TRUCKING AND ALL THE RIDERS THAT CAME DOWN WITH RICK AVOLIO TO SUPPORT THE MOH DISPLAY AT THIS YEAR'S NAMJAM!
http://www.hardtailz.com/
http://www.hardtailz.com/
AND HERE'S SOME OF OUR FANTABULOUS SPONSORS!
NAMJAM HOST HOTEL:
HOLIDAY INN EXPRESS @ TUCSON INTL. AIRPORT2548 E. MEDINA ROAD
TUCSON, AZ 85756-7135
Hotel Front Desk: 1-520-889-6600 Hotel Fax: 1-520-8896168
http://www.hiexpress.com/Tucson-airport
WE THANK FONZIE ~ JASON ~ SCOTT ~ AND ~ ALL THE STAFF AT HIE TUCSON AIRPORT LOCATION FOR THIER
AWESOME HOSPITALITY ~ GREAT DISCOUNT ~ AND ~ TOTAL CUSTOMER SERVICE FOR OUR NAMJAM GUESTS!
WE'LL BE BACK IF YOU LET US! :-)
THIS HOLIDAY INN EXPRESS ACCOMODATED NAMJAM GUESTS FROM AS FAR AWAY AS COLORADO, NEW MEXICO, THE NAVAJO RESERVATION AND ALL OF ARIZONA! WE CAN'T THANK YOU ENOUGH & WE ALL HAD A GREAT STAY!
WE THANK YOU FOR YOUR FABULOUS HOSPITALITY!
HAPPY 25TH ANNIVERSARY HOOTERS!
WE THANK KIM & THE HOOTER GIRLS FROM TUCSON - TANQUE VERDE LOCATION FOR COMING OUT TO NAMJAM & SUPPORTING THE SILVER ROSE CHARITY POKER RUN & BIKE SHOW!
YOU MADE IT SO MUCH MORE FUN & OUR RIDERS HAD A BLAST!
THANK YOU SO MUCH!
THANKS TO OUR OH SO COOL SPONSORS!
POKER RUN & RIDE IN BIKE SHOW PRIZES WERE AWARDED
by THE "HOOTER GIRLS"
POKER RUN & RIDE IN BIKE SHOW PRIZES WERE AWARDED
by THE "HOOTER GIRLS"
APLASTIC ANEMIA & MYELODYSPLASTIC SYNDROME ARE RARE BONE MARROW DISEASES!
HOW WE LEARNED OF APLASTIC ANEMIA & MYELODYSPASTIC SYNDROMES OUR GRANDDAUGHTER CARMEN....
WE HAD NEVER HEARD OF APLASTIC ANEMIA UNTIL WE GOT A CALL ABOUT OUR NOW 7 YR. OLD GRANDDAUGTER CARMEN, SHE WAS DIAGNOSED WITH APLASTIC ANEMIA THIS PAST APRIL. THIS DIAGNOSIS HAS CHANGED HER LIFE FROM NORMAL EVERYDAY ACTIVITIES OF A 6 YR.OLD TO A DAILY CHALLENGE & SOMETIMES A BATTLE WITH APLASTIC ANEMIA THAT CAUSED COMPLETE BONE MARROW FAILURE & SHUT DOWN OF HER IMMUNE SYSTEM. WHAT WE LEARNED ABOUT CARMEN IN THESE MONTHS IS THAT SHE TRULY IS A WARRIOR - ALWAYS SMILING AND ALWAYS STRONG - UNBELIEVABLY KNOWLEDGABLE ABOUT HER DISEASE, WHERE DO THESE LITTLE ANGELS GET THIS EXTRAORDINARY STRENGTH? WE HAVE THE GREATEST FAITH & HOPE THAT CARMEN WILL GET WELL, UNTIL SHE DOES HER DAILY BATTLE IS TREMENDOUS!
THE VIETNAM VETERAN ~ AGENT ORANGE DIOXINS & MDS...
IN SPEAKING WITH THE AAMDS FOUNDATION DREADING THE MATERIALS WE WERE ABOUT TO REQUEST FOR MY DAUGHTER & CARMEN, US, HER SCHOOL AND SCHOOL NURSE - ALL OF US HAD TO LEARN ABOUT THIS DISEASE NONE OF US HAD HEARD OF BEFORE. IN CONVERSATION I MENTIONED THE SILVER ROSE & IT'S MISSION WITH VIETNAM VETS WITH CANCERS & BLOOD DISEASES FROM AGENT ORANGE EXPOSURE AND THIER CHILDREN WHO ARE INCREASINGLY BECOMING ILL FROM THESE DISEASES PASSED ON BY THIER VETERAN PARENT. THE LADY THAT ANSWERS THE PHONE AT THE AAMDS FOUNDATION IS LEILA, SHE TOLD ME ABOUT THE VIETNAM VETERANS THAT ARE PATIENTS RECEIVING TREATMENT FOR MDS - WHY? BECAUSE MDS IS YET ANOTHER BLOOD DISEASE CAUSED BY AGENT ORANGE EXPOSURE TO THE VIETNAM VETERAN! HAVE YOU EVER HEARD THAT? IN ALL OF OUR WORK WITH AGENT ORANGE & THOSE ILL FROM IT THIS IS THE FIRST WE'VE HEARD OF AAMDS!
THE AAMDS FOUNDATION IS PLANNING TO ATTEND NAMJAM2008 AS A PART OF THE SILVER ROSE PROGRAM, WE WILL ASK THEM TO SPEAK ON AAMDS AND THE VETERAN. WE HAVE SINCE HEARD FROM A VIETNAM VET THAT HAS BEEN TREATED FOR THE PAST 4 YRS. THROUGH THE VA FOR MDS AND HE KNOWS OTHERS THAT ARE ILL FROM IT AS WELL.
WE ARE SHOCKED! WE ARE WORRIED! AND WE FEEL AN URGENCY TO GE THE WORD OUT ON AAMDS TO THE VIETNAM VETERAN. WHETHER THE FOUNDATION IS ABLE TO MAKE IT TO NAMJAM OR NOT, THERE WILL BE INFORMATION AVAILABLE AT THE SILVER ROSE BOOTH - THIS IS IMPORTANT INFORMATION PLEASE STOP BY TO PICK IT UP!
THE AAMDS FOUNDATION IS PLANNING TO ATTEND NAMJAM2008 AS A PART OF THE SILVER ROSE PROGRAM, WE WILL ASK THEM TO SPEAK ON AAMDS AND THE VETERAN. WE HAVE SINCE HEARD FROM A VIETNAM VET THAT HAS BEEN TREATED FOR THE PAST 4 YRS. THROUGH THE VA FOR MDS AND HE KNOWS OTHERS THAT ARE ILL FROM IT AS WELL.
WE ARE SHOCKED! WE ARE WORRIED! AND WE FEEL AN URGENCY TO GE THE WORD OUT ON AAMDS TO THE VIETNAM VETERAN. WHETHER THE FOUNDATION IS ABLE TO MAKE IT TO NAMJAM OR NOT, THERE WILL BE INFORMATION AVAILABLE AT THE SILVER ROSE BOOTH - THIS IS IMPORTANT INFORMATION PLEASE STOP BY TO PICK IT UP!
WE ASK THAT EVERY DIRECTOR VSO VSR VBO ANYONE THAT SERVES VIETNAM VETERANS PLEASE GET THIS INFORMATION AND BEGIN SPEAKING ABOUT IT TO THOSE YOU SERVE!
PLEASE REQUEST INFORMATION VIA THE AAMDS WEBSITE
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